Despite growing awareness, persons with albinism remain one of the most misunderstood and marginalised groups globally. Prior to International Albinism Awareness Day (IAAD), which is observed annually on 13 June, Unisa’s Department of Leadership and Transformation (DLT) held an online webinar titled "Albinism Awareness: Knowledge Breaks Stigma" on 11 June 2026 to address albinism-related issues.

Challenges faced by persons with albinism do not necessarily stem from their physical traits; rather, they are closely linked to broader issues such as stigma, discrimination and social exclusion. In that sense, public education is crucial for fostering an inclusive society where individuals with albinism are accepted and valued for who they are.

In her welcoming remarks, DLT Executive Director, Prof Grace Khunou, defined albinism as a genetic condition that affects the production of melanin in the skin, hair and eyes. Additionally, she highlighted the importance of observing IAAD to promote human rights and inclusion in education, employment and community life. She hoped that, for the institution, the webinar would offer a new way of doing things differently in policy-making, teaching and learning, and the governance and management of this condition, not only for Unisa but for every institution.  

Among the panellists, Gauteng Government social worker, Thembi Sindane, reflected on her personal experiences as a person with albinism. "As the only child with albinism in my neighbourhood," she said, "my primary school years were made easier because of the support of my family and community."  

Despite the challenges encountered when transitioning from primary school to high school, including being subjected to bullying due to a lack of awareness about her condition, she highlighted that the ordeal motivated her to become an advocate for those who could not speak up for themselves. Notably, Sindane dismissed misconceptions about persons with albinism, including that they do not die but disappear. "In combating myths surrounding albinism," she explained, "I changed my field of study from finance and pursued social work."

Deputy chairperson of the Tshwane Forum for Students with Disabilities, Tayron Mafuna, emphasised that the forum fights for the rights of all living with disabilities. Furthermore, she noted that the lack of melanin affects all ethnic groups. "Although there is no cure,” she added, “persons with albinism can live healthy lives under appropriate care."

Mafuna acknowledged that people living with any kind of disability are prone to discrimination, whether at schools, in the workplace, or in their communities. As such, she underscored the importance of honouring IAAD every day, not just in June.

Majorie Malefane, a professional nurse at Prinshof School for the Partially Sighted and Blind, remarked that albinism is not a curse or disease, but a genetic disorder. She explained that teachers should be informed about the condition to better accommodate children with albinism. In addition, she provided an overview of preventative measures that can be implemented. Among these, she highlighted safety and health recommendations, social and emotional support, and the need to collaborate with parents in promoting albinism-friendly environments. She applauded DLT for taking a step towards fostering an inclusive society and hoped that more institutions would adopt similar initiatives.

The Chairperson of Unisa’s Employee Disability Forum, Nozuko Langa, said that as a child, she was quickly dismissed from playing with other kids because of her disability. Ultimately, she urged everyone with albinism to focus on improving themselves and to prove to society that albinism is not a hindrance.

Participants shared knowledge and their personal experiences during the question-and-answer session. Moreover, emphasis was placed on creating more awareness platforms to highlight issues faced by persons with albinism.  

* By Moleboheng Mpafa, Communication Intern, Department of Institutional Advancement